Fun with medicine and ethics: IVF and consent

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anthriel
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Post by anthriel »

Imp wrote:But I still strongly feel no one has the "right" to have a child. And extrapolating the right to marry and found a family to mean that society somehow owes one individual to pull all stops to fulfil that person's desire to have a child doesn't quite cut it for me. One could as well argue that because one has the right to marry that society has to ensure that every individual who wants to marry does so.
I agree. This thought might get me in trouble, but I've always been vaguely bothered by the fact that so many health insurance companies cover infertility treatments. My brother and his (now ex-) wife had approximately $10K of treatments, courtesy of their health insurance company.

Of course, insurance companies are able to make their own decisions, and if I were one of those people wanting to use that particular benefit, I would certainly see it differently. But to me, I had this odd feeling that health insurance companies were about.. well... insuring health. You can be a perfectly healthy person and never reproduce. Couldn't the dollars put into fertility treatments for some couples be used for more basic coverage for more people?

That's the socialist in me talking, I'm sure. :)

And don't get me started on how insurance companies so freely cover the costs of Viagra but make getting birth control pills so logistically difficult. Grrr.
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Post by yovargas »

I've said it before and I'll say it again: I hate the word "rights". I fee like in almost all conversations it has become a nearly meaningless term. At this point, I suspect we'd probably be better off without it.
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anthriel
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Post by anthriel »

Impenitent wrote:I don't doubt that many donors do so from a sense of altruism; a friend of mine, having had her two boys and knowing she was not going to have any more children, also went through the procedure you describe and donated the harvested eggs precisely from that sense of altruism. I have no idea whether there is any guarantee of anonymity, or whether it matters to her in any case.
It certainly would have mattered to me, and, in fact, it did.

I had a certain niggling concern about my own feelings in the matter. I definitely feel that the child born in this scenario would be the child of the people who reared it. Not my child, in any way other than DNA. But I couldn't quite shake the feeling that that very technical link would matter to me, and I didn't want my altruistic choice to end up haunting me. So perhaps I was more selfish than altruistic in the end... however, for me, the female equivalent of "jerking off into a jar and walking away" was not possible. I would care. I always care. <sigh>

But I also would hate for your friend's altruistic act to come back and bite her in the butt... someone shows up 20 years from now and says "you can't walk away from the responsiblity of helping to create a life so you owe me something". She really doesn't; she was trying to help someone achieve their dream.

It would be far easier. morally, to give up a kidney, I think. :)
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"A cage," Éowyn said. "To stay behind bars, until use and old age accept them, and all chance of doing great deeds is gone beyond recall or desire.”
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Post by vison »

Anthriel wrote:But I also would hate for your friend's altruistic act to come back and bite her in the butt... someone shows up 20 years from now and says "you can't walk away from the responsiblity of helping to create a life so you owe me something". She really doesn't; she was trying to help someone achieve their dream.
See, this is the thing. I think there IS a responsibility - although I admit I am not sure just what that responsibility entails. Altruistic acts often have unforeseen and sad consequences and good intentions are no guarantee of good outcomes.

A kidney won't grow up to be another person.

As for the Viagra thing, it's like something out of a very bad dystopic novel, like The Handmaid's Tale only not as well written. It's SUCH an absurdity. :rage: I could easily go completely mad, bonkers, nutz, loony, insane, thinking about it.
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Post by Primula Baggins »

I find myself inclined to agree that expensive infertility treatments maybe should not be on the "must be covered" list—maybe you could buy a more expensive policy that covers them, if you wanted that possibility available. But I once got pregnant by sneezing while thinking of my husband, so I can't genuinely feel the pain of that problem, which I do know is real. And adoption is also expensive.

Birth control, however—man, it makes me angry that so many policies don't cover it, and that attempts are being made to shut down Planned Parenthood entirely, depriving women of what may be their only option for birth control and gynecological care.
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Post by vison »

Our Canadian health plan does not cover prescriptions, so it's not an issue. If you are low income, Pharmacare (in BC, not sure about other provinces) will pay part or all of your prescription costs. I do not know if that includes Viagra but it does cover birth control pills.

Viagra and Cialis are on the list, so I guess they are covered under Pharmacare.
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Post by yovargas »

Primula Baggins wrote:But I once got pregnant by sneezing while thinking of my husband...

:shock: :shock: :shock: :shock: :shock: :shock:









:D
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Post by vison »

:rofl:
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Post by Primula Baggins »

I was merely trying to convey that I never exactly had infertility problems. . . . :D
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Post by anthriel »

Neither did I. And I was one of those gamblin' kind of gals who "chose" to wait until I was older to have children. ;) Actually, what I "chose" was to have a husband whom I loved and who would be a wonderful, responsible father, before I actually had children. I just couldn't find him, right off.

I am very glad, and humbly grateful, that my choices didn't result in fertility issues. Mr. Anth and I tried one month to conceive, and we have two children. :) In another scenario, I would be darned Mrs. Duggar.
But I also would hate for your friend's altruistic act to come back and bite her in the butt... someone shows up 20 years from now and says "you can't walk away from the responsiblity of helping to create a life so you owe me something". She really doesn't; she was trying to help someone achieve their dream.


See, this is the thing. I think there IS a responsibility - although I admit I am not sure just what that responsibility entails. Altruistic acts often have unforeseen and sad consequences and good intentions are no guarantee of good outcomes.
I just can't quite get on your (and, I believe, Impy's) page, here. I think the child created from such an act does have a right to know their biological parent's medical information, but that's about it. I wonder if my covert scientist brain is interefering... the mechanical act of donating a half cell whose DNA *might* end up part of a fertilized zygote, to help someone achieve their dreams, seems so different from making the complex socially responsible choice of choosing to raise a child.

After reading yours and Impy's posts, though, I am *so* glad I didn't make the decision to help out those unknown folks with fertility problems. I would have been devastated to think that something I did to help someone else could be perceived as not living up to my responsibilites. You are so right, altruistic choices can have negative effects!
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"A cage," Éowyn said. "To stay behind bars, until use and old age accept them, and all chance of doing great deeds is gone beyond recall or desire.”
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Post by Maria »

1987, 1988 & 1990.... three babies born. The second two were conceived while using birth control that should have worked. If I hadn't gotten myself sterilized we'd have a couple of dozen kids by now. :shock: Even now I'm afraid to admire a baby very much, for fear the tubes will grow back together... :help:

Sometimes I think we should have had more children, since we are of above average intelligence and it's just sad that morons outbreed those like us--but as we get older we find more serious health problems associated with our genes that wouldn't make sense to pass on in the name of superiority- since we so obviously are *not*.

Brains aren't everything.
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Post by anthriel »

Maria wrote:1987, 1988 & 1990.... three babies born. The second two were conceived while using birth control that should have worked. If I hadn't gotten myself sterilized we'd have a couple of dozen kids by now. :shock: Even now I'm afraid to admire a baby very much, for fear the tubes will grow back together... :help:
:rofl:
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Decidedly not. :) It was kind of amusing to me that my SAT scores were such a sales point. Yeah for intelligence! :horse:
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"A cage," Éowyn said. "To stay behind bars, until use and old age accept them, and all chance of doing great deeds is gone beyond recall or desire.”
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Post by Cerin »

I think the idea that we all have a right to a biological child is absurd, particularly absent the physical capability of having one. I believe the notion that individuals incapable of procreating naturally have the right to be assisted through the use of expensive technologies and procured sperm/eggs/wombs is impractical and ethically dubious. I also believe the desire for a biological child should not be put ahead of consideration for the peculiar rights and interests of human beings created using donor sperm or eggs.

vison wrote:See, this is the thing. I think there IS a responsibility - although I admit I am not sure just what that responsibility entails.
I agree. I think the responsibility is to recognize that a human being you helped create has the right to try and understand who he or she is, whether or not it inconveniences you. If you aren't comfortable with that possibility, then don't donate/agree to the use of donated material.


nel, I keep coming back to what I see as an inconsistency: On the one hand, you find the societal view that creating new children is preferable to adoption to be harmful to a range of people. On the other hand, you are sympathetic to couples not naturally able to conceive (among the group you say is harmed by that viewpoint) who emphatically demonstrate that viewpoint by eschewing adoption and instead procuring sperm or eggs from outside the relationship in order to create new children they are unable to create in the natural course of their relationship. I'm having trouble understanding why you would advocate for a course of action that demonstrates an attitude you believe is harmful to the very people demonstrating it. Is it simply that they have as much right to hurt themselves as other people have to hurt them, and you support that right? Or am I misunderstanding you somewhere along the line?
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Post by nerdanel »

Cerin wrote: nel, I keep coming back to what I see as an inconsistency: On the one hand, you find the societal view that creating new children is preferable to adoption to be harmful to a range of people. On the other hand, you are sympathetic to couples not naturally able to conceive (among the group you say is harmed by that viewpoint) who emphatically demonstrate that viewpoint by eschewing adoption and instead procuring sperm or eggs from outside the relationship in order to create new children they are unable to create in the natural course of their relationship. I'm having trouble understanding why you would advocate for a course of action that demonstrates an attitude you believe is harmful to the very people demonstrating it. Is it simply that they have as much right to hurt themselves as other people have to hurt them, and you support that right? Or am I misunderstanding you somewhere along the line?
No, you're correct that there is an inconsistency. I began this thread more-or-less sharing vison's and Impy's mindset. To my own surprise, I've found myself advocating a position I hadn't expected to take. I'm a fairly strong individualist, and I I tend to favor people who are facing challenges or disadvantages. I think those things are both playing in somehow. The latter plays into my view that adoption should not be considered inferior to biological procreation (which is also influenced by the various concerns I shared in my first post). But BOTH my individualism and my pro-underdog tendencies are playing into my feeling really uncomfortable with a string of people who have had their own biological children speaking rather dismissively about how others (for whom biological children are apparently really important) don't have a right to the practical things that would make biological parenthood possible. (Essentially, it's a "negative right" - all that is required is for the state not to interfere with the anonymous sperm donation process that is otherwise freely available to these prospective parents. It's not a positive right that requires any further accommodation from society.) I am especially concerned about lesbian couples who want children and single women who haven't been able to find the right partner, and on top of that are struggling with the possibility of having to give up their apparent dream of having children. In other words, we're not talking about uber-privileged demographics who believe everything in life has to go exactly right for them, contra vison's suggestion. We're talking about people who have inherently faced some rather serious challenges (okay, from a first-world perspective) and are going to face additional legal and practical challenges after the birth of their children, because they will be in alternative (and sometimes despised) parenting arrangements.

Now, I can't relate to the idea of wanting biological children at all. It's something that's just, at this point, completely out of the realm of my experience. So I don't quite get, at an emotional level, why it is so important to the single women or lesbians in question to have kids at all, let alone with a biological tie. But I accept that it is very important to them, even if that is puzzling to me. And it makes me uncomfortable to see people who have found themselves in the more "privileged" position of being able to procreate naturally and easily (as many have confessed, simply by thinking about it =:)) insist that others should have to give up on their rather-fervent desire to share in that experience. In many cases, that can be the consequence of barring anonymous sperm donation.

So yes, you're absolutely right that there is a contradiction, because I have been completely flummoxed to find myself typing the things that I am typing. A week ago I could've written the first half of your post myself. I'll probably end up on Team Cerin/vison/Impy eventually. But I just don't understand why I'm not there right now. This thread has been unexpectedly weird for me, in its causing me to support a demographic that I've more or less disagreed with until now.
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Post by vison »

nerdanel wrote:In other words, we're not talking about uber-privileged demographics who believe everything in life has to go exactly right for them, contra vison's suggestion.
But I'm not talking about "uber-privileged demographics". I'm talking about everyone everywhere who wants things they can't have.

I think many things are horribly "unfair". But LIFE isn't fair. I would not dream of hindering a lesbian from having a child. I just think she should think of the child ahead of herself - which is what you have to do when you have a baby. You have to be ready to throw yourself under a train for your kids. If you can't even deal with the prospect that the as-yet unconceived baby might want to know who its biological father is, you're not ready to have a child.
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Post by Impenitent »

vison, yes, you've captured it in a nutshell so I need add nothing further.
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Post by nerdanel »

vison wrote:If you can't even deal with the prospect that the as-yet unconceived baby might want to know who its biological father is, you're not ready to have a child.
Right, I agree with you on that. My concern is, as I've now stated at least twice, that [add: banning] anonymous donation will lead to unavailability of sperm donors. Although I can't find the link offhand, I read yesterday that when the UK mandated that donors not be anonymous, they immediately lost 3/4 of their donors. That, coupled with the UK's requirement that each donor not give sperm more than ten times, can near-instantly create a nationwide sperm shortage. And my concern is that such a sperm shortage could have the practical consequence of depriving lesbian/single women of even the opportunity to try to have their own child. (and I am assuming for the sake of argument that their desire to have their "own child" is both reasonable and legitimate, much though it is far from the scope of my experience or comprehension) So that's my issue. It has nothing to do with the mother(s)'s precluding the child from knowing its parentage, although I know I mentioned that earlier as one argument made by proponents of anonymous sperm donation. That is not my personal argument or concern.
Last edited by nerdanel on Thu Apr 07, 2011 12:36 am, edited 1 time in total.
I won't just survive
Oh, you will see me thrive
Can't write my story
I'm beyond the archetype
I won't just conform
No matter how you shake my core
'Cause my roots, they run deep, oh

When, when the fire's at my feet again
And the vultures all start circling
They're whispering, "You're out of time,"
But still I rise
This is no mistake, no accident
When you think the final nail is in, think again
Don't be surprised, I will still rise
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Post by Cerin »

Thanks for that explanation, nel!
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Post by Voronwë the Faithful »

nerdanel wrote:My concern is, as I've now stated at least twice, that anonymous donation will lead to unavailability of sperm donors.
I'm pretty sure that you mean "that banning anonymous donation will lead to unavailability of sperm donors", yes? Or am I completely confused?
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Post by nerdanel »

Voronwë_the_Faithful wrote:
nerdanel wrote:My concern is, as I've now stated at least twice, that anonymous donation will lead to unavailability of sperm donors.
I'm pretty sure that you mean "that banning anonymous donation will lead to unavailability of sperm donors", yes? Or am I completely confused?
Apologies; yes, your correction is exactly what I meant.
I won't just survive
Oh, you will see me thrive
Can't write my story
I'm beyond the archetype
I won't just conform
No matter how you shake my core
'Cause my roots, they run deep, oh

When, when the fire's at my feet again
And the vultures all start circling
They're whispering, "You're out of time,"
But still I rise
This is no mistake, no accident
When you think the final nail is in, think again
Don't be surprised, I will still rise
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